The Parkinson’s & Movement Disorder Foundation (PMDF), Westminster, Orange County, CA

14772 Moran Street
Westminster, CA 92683

714–369–7426

Articles & Newsletters

our mission is to create

a world without PARKINSON’S & all Movement Disorders

President’s Letter Spring, 2016

Mark Wadsworth

Dear Friends of PMDF,

I recently read an excellent book about Parkinson’s disease: Brain Storms: The race to unlock the mysteries of Parkinson’s disease, by Jon Palfreman. The author was diagnosed with PD in 2012. He read everything he could about Parkinson’s disease, and spoke to researchers and clinicians to understand his condition. He says, “As a lifelong science journalist who had reported on this disease, I was better placed than most to figure out the state of Parkinson’s research and ascertain what kind of future I faced.”1 This book is the result of that research. It’s about the history of PD research and the exciting things that are being explored now. But it is also a personal memoir of a person with Parkinson’s.

In the Spring, 2012, issue of this newsletter I wrote about 23andme, a genetic testing service. They were conducting a research study on the genetics of Parkinson’s Disease, and offered free DNA testing to people with Parkinson’s disease. That study was suspended for a time, but now the offer is available again. If you have been diagnosed with Parkinson’s disease and are interested in this research, visit http://23andme.com/pd for more information. (PMDF is not affiliated with 23andme, and makes no recommendations about them.)

Spring is here, and that means it’s time for the Zent-A-Thon, our annual 5K run/walk. Details are elsewhere in this newsletter; be sure to read about it and sign up! And don’t forget to read the other articles in this newsletter, about the Dystonia Advocacy Network and the work of one of our grant recipients.

Sincerely,

Mark Wadsworth President


1 Palfreman, Jon (2015). Brain Storms: The race to unlock the mysteries of Parkinson’s disease (p. 5) New York, New York. Scientific American/Farrar, Strauss and Giroux.,


Newsletter Articles

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IssueTitleAuthor
Spring 2016 Interview With Dr. Gabrielle Wilson, 2015 PMDF Grant Winner Mary Ann Chapman, Ph.D.
Spring 2016 President's Letter Mark Wadsworth
Spring 2016 Interested in Becoming a Legislative Advocate for Dystonia? Let Us Introduce You to DAN April Ingram
Spring 2016 2016 Zent-a-thon Fundraiser Vi Tran
Winter 2015 2015 PMDF Fundraiser Vi Tran
Winter 2015 President's Letter Mark Wadsworth
Winter 2015 Dystonia-Associated Pain—The Chicken and the Egg April Ingram
Winter 2015 PMDF Receives Record Number of Grant Applications Mary Ann Chapman, Ph.D.
Winter 2015 Neuroplasticity and Dystonia April Ingram and Mary Ann Chapman, Ph.D.
Fall 2015 Hollywood Premier Night & Silent Film Gala Fundraiser Sami Nasrawi
Fall 2015 President's Letter: Exercise Mark Wadsworth
Fall 2015 More Reasons to Make Healthy Food Choices April Ingram
Fall 2015 Multiple System Atrophy and Prions Mary Ann Chapman, Ph.D.
Fall 2015 Listen to the Sound of My Voice April Ingram
Summer 2015 PMDF presents The 2015 Hollywood Premier Night & Silent Film Gala Sami Nasrawi
Summer 2015 President's Letter Mark Wadsworth
Summer 2015 Trauma-Induced Dystonia April Ingram
Summer 2015 Interview With Dr. Mohamed Salama—2014/2015 PMDF Grant Award Winner Mary Ann Chapman, Ph.D.
Summer 2015 Wrestling with Restless Leg Syndrome April Ingram
Spring 2015 Interview With Dr. Maguire-Zeiss, 2014/2015 PMDF Grant Award Winner Mary Ann Chapman, Ph.D.
Spring 2015 President's Letter Mark Wadsworth
Spring 2015 Mirror in the Brain? Reflective Movements in Movement Disorders April Ingram
Spring 2015 In a Perfect World—Bridging the Research Funding Gap April Ingram
Spring 2015 5K Zent-a-Thon Walk/Run
Winter 2014 2014 PMDF Fundraiser—Haunted Harbor Vi Tran
Winter 2014 President's Letter Mark Wadsworth
Winter 2014 Redefining Dystonia—Classification to Guide Diagnosis and Treatment April Ingram
Winter 2014 Testing the Sense of Taste in Early Parkinson's April Ingram
Fall 2014 Haunted Harbor: PMDF Fundraiser to Raise Money for Research
Fall 2014 President's Letter: Items of interest Mark Wadsworth
Fall 2014 Robin Williams' Possible Parkinson's Diagnosis Has Patients Concerned Dr. Sandeep Thakkar
Fall 2014 Canine Companions for Distonia April Ingram<
Summer 2014 Haunted Harbor Kellie Binder, R.N., M.S.N., A.C.N.P.
Summer 2014 President's Letter Mark Wadsworth
Summer 2014 Progress in Stem Cell Research Mary Ann Chapman, Ph.D.
Summer 2014 The Modern-day House Call: PD Testing Devices for Home Use April Ingram
Summer 2014 Support PMDF Painlessly! Mark Wadsworth
Spring 2014 2013 PMDF Grant Awards Mary Ann Chapman, Ph.D.
Spring 2014 2013 PMDF Grant Awards Mary Ann Chapman, Ph.D.
Spring 2014 President's Letter Mark Wadsworth
Spring 2014 What’s Essential to Know About Essential Tremor Lydia Dobbs
Spring 2014 What’s Essential to Know About Essential Tremor Lydia Dobbs
Spring 2014 Non-motor symptoms in dystonia Daniel Truong, M.D.
Spring 2014 Non-motor Symptoms in Dystonia Patients Daniel Truong, M.D.
Spring 2014 Tips on getting organized Kellie Binder, R.N., M.S.N., A.C.N.P.
Spring 2014 Tips on getting organized Kellie Binder, R.N., M.S.N., A.C.N.P
Winter 2013 2013 PMDF Fundraiser—The Perfect Road Trip Vi Tran
Winter 2013 President's Letter Mark Wadsworth
Winter 2013 Biomedical Engineering Students Win Innovation Prize for Project Designed for Parkinson’s Disease Treatment April Ingram
Winter 2013 Bicycle Built for Two Offers Unique Added benefits for People with Parkinson’s Disease Lydia Dobbs
Winter 2013 Staying in Step with Sound and Research on Alleviating Gait Disturbances Lydia Dobbs
Fall 2013 The Perfect Road Trip
Fall 2013 President's Letter Mark Wadsworth
Fall 2013 Symptomatic Versus Disease-Modifying Therapies for Movement Disorders Mary Ann Chapman, Ph.D.
Fall 2013 Understanding Dystonia Lydia Dobbs
Summer 2013 The Perfect Road Trip
Summer 2013 President's Letter Mark Wadsworth
Summer 2013 Transcranial Magnetic Stimulation for Focal Hand Dystonia Daniel Truong, M.D.
Summer 2013 Twisted—a Film by Laurel Chiten April Ingram, BSc. Kin
Summer 2013 Go Mediterranean—Eating for health and wellbeing Lydia Dobbs
Summer 2013 Driving and Parkinson’s disease Lydia Dobbs
Summer 2013 “The Yips”, Is it Golfer’s Cramp or a Task-Specific Dystonia? April Ingram, BSc Kin.
Spring 2013 4th Zent-A-Thon 5K Walk/Run Fundraiser
Spring 2013 President's Letter: Medications Mark Wadsworth
Spring 2013 New Dystonia Gene Mary Ann Chapman, Ph.D.
Spring 2013 Parkinson’s Treatment May Unleash Inner Creativity April Ingram, BSc Kin.
Spring 2013 Backgrounds on Dystonias April Ingram, BSc Kin.
Winter 2012 Accomplishments of 2011 PMDF Grant Award Winners Mary Ann Chapman, Ph.D.
Winter 2012 President's Letter Mark Wadsworth
Winter 2012 Interview with Devin K. Binder, M.D., Ph.D. Neurological Surgeon Kellie Binder
Winter 2012 Spice it up! Study of Turmeric in Parkinson’s Research April Ingram, BSc Kin.
Winter 2012 Question and Answer Lydia Dobbs
Winter 2012 Caregiver’s Corner: Taking Care of Yourself Lydia Dobbs
Summer 2012 Zent-A-Thon Fundraiser
Summer 2012 Presidents letter: Parkinson's Voice Initiative Mark Wadsworth
Summer 2012 Finding New Parkinson’s Genes Mary Ann Chapman, Ph.D.
Summer 2012 Let The Music Play April Ingram, BSc Kin.
Summer 2012 Can Symptom Spread in Dystonia Be Predicted? April Ingram, BSc Kin.
Spring 2012 Looking for the Winner's Circle
Spring 2012 President's Letter: 23andme Mark Wadsworth
Spring 2012 Tai Chi in Parkinson’s Disease Daniel Truong, M.D.
Spring 2012 Drugs for Non-Motor Symptoms of Parkinson’s Disease Mary Ann Chapman, Ph.D.
Spring 2012 Web site updates Mark Wadsworth
Spring 2012 Third annual Zent-A-Thon
Winter 2011 Xeomin®, a new botulinum toxin Daniel Truong, M.D.
Winter 2011 President's Letter: exercise Mark Wadsworth
Winter 2011 Fatigue in Parkinson’s disease Daniel Truong, M.D.
Winter 2011 Coffee May Reduce the Risk of Parkinson’s Disease, But Only for Some People Mary Ann Chapman, Ph.D.
Summer 2011 Fast Horses And A Warm Summer Evening… Ken Garrison
Summer 2011 President's Letter: exercise Mark Wadsworth
Summer 2011 Clinical Research Trials Karen Frei, M.D.
Summer 2011 An Interview with Dr. Flavia Nery, PMDF Grant Award Winner Mary Ann Chapman, Ph.D.
Spring 2011 An Evening with the Horses at Los Alamitos Race Track Ken Garrison
Spring 2011 President's Letter Mark Wadsworth
Spring 2011 Dysport® Daniel Truong, M.D.
Spring 2011 An Interview with Dr. Rehana Leak, PMDF Grant Award Winner Mary Ann Chapman, Ph.D.
Spring 2011 An Interview with Dr. David Loeffler, PMDF Grant Award Winner Mary Ann Chapman, Ph.D.
Winter 2010 Grant Awards for Research 2010 Mary Ann Chapman, Ph.D.
Winter 2010 President's Letter: Thanks Linda Sonnonstine Spery
Winter 2010 Hollywood Confidential PMDF 2010 Fundraiser Vi Tran
Fall 2010 Murder on the Set…
Fall 2010 President's Letter: Making a Difference Linda Sonnonstine Spery
Fall 2010 Deep Brain Stimulation Surgery for Parkinson’s Disease Devin K. Binder, M.D., Ph.D.
Fall 2010 Giving Back Tessa Lynn Zent
Fall 2010 New Hope for Stroke Survivors with Spasticity David D. Brown, D.O.
Spring 2010 Dinner and a Mystery…With the Hollywood Crowd Ken Garrison
Spring 2010 President's Letter: Medical Scams Linda Sonnonstine Spery
Spring 2010 Dysport
Spring 2010 Pramipexole is Effective in Treating Depression in Parkinson's Patients Daniel Truong, M.D.
Spring 2010 Sense of Smell in Parkinson’s Disease Mary Ann Chapman, Ph.D.
Summer 2009 President's Letter Linda Sonnonstine Spery

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