President’s Letter Spring, 2016
Dear Friends of PMDF,
I recently read an excellent book about Parkinson’s disease: Brain Storms: The race to unlock the mysteries of Parkinson’s disease, by Jon Palfreman. The author was diagnosed with PD in 2012. He read everything he could about Parkinson’s disease, and spoke to researchers and clinicians to understand his condition. He says, “As a lifelong science journalist who had reported on this disease, I was better placed than most to figure out the state of Parkinson’s research and ascertain what kind of future I faced.”1 This book is the result of that research. It’s about the history of PD research and the exciting things that are being explored now. But it is also a personal memoir of a person with Parkinson’s.
In the Spring, 2012, issue of this newsletter I wrote about 23andme, a genetic testing service. They were conducting a research study on the genetics of Parkinson’s Disease, and offered free DNA testing to people with Parkinson’s disease. That study was suspended for a time, but now the offer is available again. If you have been diagnosed with Parkinson’s disease and are interested in this research, visit http://23andme.com/pd for more information. (PMDF is not affiliated with 23andme, and makes no recommendations about them.)
Spring is here, and that means it’s time for the Zent-A-Thon, our annual 5K run/walk. Details are elsewhere in this newsletter; be sure to read about it and sign up! And don’t forget to read the other articles in this newsletter, about the Dystonia Advocacy Network and the work of one of our grant recipients.
Mark Wadsworth President
1 Palfreman, Jon (2015). Brain Storms: The race to unlock the mysteries of Parkinson’s disease (p. 5) New York, New York. Scientific American/Farrar, Strauss and Giroux.,